This blog is being written to spread the awareness about this devastating infant genetic disorder – Krabbe, a leukodystophy family disease.
It is suggested that the people planning for a baby should consider genetice counselling to see if they carry any chances of genetic disorders which may be passed on to their babies and what are the tests available to diagnose those if any.
You are free to copy the material to spread the message wherever you can and to use it in constructive ways.
I also thank the following references:
http://en.wikipedia.org/wiki/Krabbe_disease – Wikipedia
http://www.ninds.nih.gov/disorders/krabbe/krabbe.htm – National Institute of Neurological Disorders and Strokes (NINDS)
To find more information about this disease, visit:
http://ghr.nlm.nih.gov/condition=krabbedisease – Genetics Home Reference
Organizations :
- United Leukodystrophy Foundation
2304 Highland Dr,
Sycamore, IL 60178
office@ulf.org
http://www.ulf.org
Tel : (815) 895-3211; (800) 728-5483 - Hunter’s Hope Foundation
P.O. Box 643,
Orchard Park, NY 14127
info@huntershope.org
http://www.huntershope.org
Tel : (716) 667-1200, (877) 984-HOPE - National Organization for Rare Disorders (NORD)
P.O. Box 1968,
(55 Kenosia Avenue)
Danbury, CT 06813
orphan@rarediseases.org
http://www.rarediseases.org
Tel : (203) 744-0100, (800) 999-NORD - Myelin Project
1400 Wallace Blvd.
Suite 258
Amarillo, TX 79106
Candace.Root@ttuhsc.edu
http://www.myelin.org
Tel : (806) 356-4693, (800) 869-3546
